Monday, 5 September 2011

Breast Cancer isn't a Game!


I understand why this latest game on my FB was developed, but it is creating upset with people who are trying to make sense of the BC journey. People affected by BC can either ignore or join in. I and quite few others though are venting our disgust at this latest titillation on FB.


PVT message I received for the third time:

Ok Pretty Ladies

It's that time of year again in support of Breast cancer Awareness!
We all remember last year’s game of writing your bra colour as your status? or the way we like our handbag handy.

Remember last year so many people took part that it made National News, and the constant updating of status reminded everyone why we're doing this and helped raise awareness!

...Do Not Tell Any males what the status's mean, keep them guessing and please broadcast this to all your female friends to see if we can make a bigger fuss this year than last year.

I did my part...So now it's your turn!

The idea is to choose the month you were born and the day you were born. Pass this on to the girls only and let’s see far it reaches around. The last one about the bra went round the world.

So you'll write...I'm (your birth month) weeks and I'm craving (your birth date)!!! as your status.



Is there method in this madness, well to the individual who created it yes. His or her intentions were to create awareness plus support for BC. But to me it was just not well thought through. Breast cancer survivors that go through a more rigorous treatment than I have faced may not have children.

The other issue I have with this game is the secrecy it generates. We took Breast cancer out of the closet. Why place it back in?

I am personally tired of people acting like my issue has been solved when I know because of the close community I am involved with that is not the case. There are women out there with better diagnoses than myself and BC has returned. That is the scariest heavy load I carry around with me. The knowledge I face could mean I could be back to square one which nearly happened back in January this year. The pain and worry I faced for those several weeks I would not wish on my dearest nearest enemy. My results were clear, but even my oncologist was worried.

I understand we want a fluffy outcome to a very much dome a gloom situation, but BC is not a laughing matter. Whilst a survivor smiles on the outside, we are caged emotionally inside. We are screaming to be heard, but they are silent screams because we are trying not to offend. I read blog, upon blog and I have developed relations with those affected by BC and this journey we are on is very, very lonely.

So I am sorry but these games to me are just not appropriate especially when I am chatting to individuals that are Stage IV and facing the agony of chemo, Rads and meds with no end in sight. That is the reality of BC not this silly game. Please bring back the pink ribbon in its entirety as the true symbol of BC. Not the silly games and pink wigs... We need the reality of Breast Cancer to be taken seriously.


Today I went to my GP and I am being referred for a ultra sound on my hip. I don’t know what I have done, but I have been in pain for over two months now. I delayed seeing my GP because I did not want to return to yet another hospital. I even managed to do the ‘Race for life’ through pure stubbornness, but I have finally faced the fact it won’t just disappear. My fingers are firmly crossed that all will be answered on the examination.

5 comments:

  1. It is important for those of us on the frontline to point out how useless at best, these so called campaigns are - and as you so rightly say, how hurtful in this particular incidence, it is to those of us whose fertility has been impaired by chemotherapy.

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  2. Thank you for sharing this post and I'm so happy to have found you through the Weekly Round Up. I hate this latest Facebook game and have almost snapped in rage at the various strangers who have added me to their broadcast email. Their lack of sensitivity disgusts me, but I guess had I not been through the trenches of breast cancer, I wouldn't see it that way. My thoughts are with you as you go through your ultrasound. I know how overwhelming it can feel!

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  3. Hi Terri, thank you for your post. I think that by making our voices heard visa FB or blogging these silly games will soon vanish. The more people realise that speaking out is not a sin, the more control we gain on stopping this foolishness. Not every individual on this cancer ride can smile at such an insensitive game this they should take into account. xxx

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  4. I'm finally able to access your blog here (restrictions have been lifted for now) and catching up on your blog. I felt exactly the same way about this facebook meme - and had a rant about it on my blog too. http://feistybluegeckofightsback.wordpress.com/2011/09/03/slipping-off-the-fence/

    I think one of the hardest things as that people close to us think they are being supportive in joining in - I hope they hear us.

    P x

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  5. They will hun, they will... he bubbling pot can only stay bubbling for so long before ideas dry up.. then what?

    X

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